Thanksgiving 2011 Recap

This year I am so thankful for many things.  Last Thanksgiving my life was in a really good place.  I was in my best shape physically due to really getting committed to running.  We had two healthy and beautiful little girls.  We had two "nice" paid off cars.  Kev had a good job and life was good.  Last thanksgiving I was very thankful for all that the Lord had blessed us with, but this year I feel my gratitude is even greater. 

The suffering that 2011 has brought has led my heart to overflowing gratefulness.  I am so thankful that God blessed us with another child.  I am so thankful that Kevin survived his horrible wreck in July.  I am so thankful to be at home and get to tuck my sweeties in their beds every night and not still in the hospital.  I am so thankful that even though Eli has lots of challenges ahead I can see the Lord's hand in his little life.

Just one little example is that in the past four months, Eli has been unable to bare any weight on his little legs.  Over the past few weeks he is beginning to be able to bare a little weight (when held up of course).  His little legs will give way and then he will push up through his knees.  I cannot tell you how proud it makes me.  I am still eagerly praying that one day I will see his little toes begin to move....for nothing is impossible with God. 

If you think about it Eli, has two big hurdles in the next two weeks.  First is a urodynamics test which will check his bladder, bowel, kidneys, etc.   It will look for reflux and will help us know what we need to do to keep his kidneys healthy.  He will have his first MRI the following week and that will let the docs know exactly what is going on in that little head.  I must admit that I will be glad to get this all behind us.  I am praying for healthy kidneys with normal pressure and stable ventricles. 

 Happy Thanksgiving!!

Eli's 4 month update

 Our little guy is four months (and some change...mommy is very late posting this).  

 At four months you weighed 13 lbs 6 oz.  You were 23 1/2 inches.  You have been doing some good growing and it is hard to believe how much you have grown since your arrival at 34 weeks.

 You are the best little guy.  You nurse 5-6 times a day and sleep from about 8pm until 6ish.  You are so easy going and laid back.  You rarely cry unless it is time to eat or you are overly tired.

 You love your big sissy's!!  They provide a lot of entertainment for you.

 Oh, and they are a tad bit CRAZY over you!!  Eliza has recently started calling you ( E-lie Ma-shoo)...that would be Eli Matthew!!  She still pronounces it with a short E! 

You like to sit up in the bumbo seat now.  Your PT said this was good practice.  You are getting close to being able to tripod sit.

 We have worked really hard to gain this head/neck strength.  We are so proud of you!

 You really like watching TV!!  You must be a boy!  Your hair is growing.  It looks like it will be strawberry blonde.

 Eli, I am so glad God gave you to us.  Your mommy is so proud of you!

Eli is doing really well.  We had another head check last week and thankfully his head growth got back on his old growth curve after a jump the month before.  I prayed and prayed and begged the Lord for this and I truly feel that He answered.  We have another check next week at our second spina bifida clinic day. He is scheduled to have an MRI in December.  I am not looking forward to him having to be put to sleep (the thought makes me want to cry, yet I know this is part of our reality). 

He will also have his first urodynamics test next week.  I am a somewhat anxious to find out what his little bladder and bowel are doing.  I am thankful that we have had four months of not cathing, but I am preparing myself for this possibility.

Happy four months sweet boy!

The Holding Tank

I am back sitting on a fresh new blog page as I do several days week.  I type a few words and quickly delete them, unsure of what to say.

Life is so busy. Kev and I often wonder how we can slow down and simplify our lives.  I often find myself longing for a smaller house with less things to clean, keep up with, and organize.  One thing is for sure...the hurried and cluttered life brings added stress into our home and family.

2011 has been such a different year for our family.  I feel like we are still in a holding pattern.  I am sure I have shared this before but Kev's full-time job ended on Aug. 12 of this year.  We found out they were closing his office just about a week after learning that Eli had spina bifida.  We had options for re-location and such, but at the time it just wasn't an option.  Kev had been ready to leave the sales world for a while and move towards a ministry job, so we took this as the exit we needed.  So, we are waiting, praying and looking.  The Lord continues to provide "odd" jobs such as painting, construction, and such that are keeping daddy pretty busy. 

I am so so so SO SO SO thankful that back in 2003 as a young married couple Kev got hooked on Dave Ramsey on talk radio.  Of course it didn't happen until we had tons of college debt, a new house, a brand new car and credit car debt for us to realize that we needed help.  Kev listened to Dave everyday on his drive to work.  He became passionate and zealous in the pursuit of becoming debt free.  If you know him you know what I am talking about (washing out ziplock bags...that is where I drew the line!!)  I was slower to join the bandwagon as I knew this meant us needing two salaries for longer than I might have wished and meant keeping to a detailed budget.  Throughout these years Kev worked extra jobs cleaning swimming pools and overtime and little by little we attacked our debt.  We both love to give and we determined early on that we wanted to be faithful to tithe and give as the Lord led us to do.  We saved, we gave and God blessed us in many ways.  We moved baby step by baby step and saved our emergency fund for the "what ifs" of life.

This year we are living in the "what ifs."  I am so thankful that Kev took leadership in this area of our lives because I am pretty sure I would have failed miserably.  In fact, the first month we set out to follow a very strict budget, I had to have my wisdom teeth out.  It was right at the beginning of the month and the procedure alone blew our budget for the entire month.  My thought was that we should just ditch the budget and start again the next month.  Kev didn't like my idea too much.  I cannot imagine the extra stress we would be under if we hadn't worked on this area of our lives.  I am so thankful that even though I am so ready to see what God has in store, we are experiencing God's blessing and provisions in many ways even though the process has been rough.
Eli got a good report this week on his hips and Eliza got her cast off and we are so thankful for that!  And because pictures make every post better....

Happy Halloween!!

From the cutest Ladybug, Butterfly and Tiger...I ever did see!

FOUR

This month our big girl turned FOUR!  It is hard to believe that she growing up so fast.  At age four Ella, you are still FULL OF LIFE!!  You are our hot or cold girl/ our sweet or spicy. You are full of drama, fun and joy! 

Right now you love playing school.  You even have acquired quite a "teacher voice." You crack us up when we hear you saying to Eliza, "Honey, I have asked you to sit down."  You are actually a very good little teacher and will take any opportunity to mother/teacher your little sister or cousins.  You recently have started loving to color.  You will sit at your table and color picture after picture.  Your coloring has improved a ton recently, as you are staying in the lines and paying more attention to detail.  Your favorite thing to draw is still a rainbow.  You love to write your name the wrong way (like an E with four lines or add in a random T ) even though you know the right way (because you know this drives your teacher mommy batty!) 

You love all things pink, sparkly and adventurous!  You never meet a stranger and will try to make a friend wherever you are!   You are a great big sister.  Eliza loves you so much and I am sure Eli will too.  You love to help and have quite a knack for organization (when you want too).   You have grown to be a great eater.  Your favorite veggies are broccoli, carrots and you love salads.  You love chocolate like your mommy and can talk me into a milkshake way too often! 

We have been talking lots about sin, our behavior and living for Jesus.  The other day you confessed to taking a toy in your backpack that you were told to leave at home.   You told me as soon as I pick you up from your class. When we got in the van your heart was broken over your disobedience and you asked if we could pray.  You prayed and mommy cried as it was the first time I really feel like you felt the conviction of sin.  Mommy and Daddy want nothing more than for you to know and live for  Jesus.

Ella, I have no doubt that God has big plans for your little life.  You are such a leader and have such a love for others.  I pray that you grow this year in knowledge and grace.  We love you more than words can describe.

Learning

This year has by far been the hardest of my entire life.  This season of difficulty has rocked our world, shaken us to the core, challenged us at every angle and yet we are making it.  In the midst of this hard year I feel like the Lord has been whispering truths into my life.  Truths that He keeps bringing to my mind over and over, truths that are helping me through. 
1. I love you.
2.  I am with you.
3.  Don't worry about tomorrow, today has enough!
4.  It is okay to let go of some relationships.
5.  You cannot please everyone, and that is okay.
6.  It is okay to let go of your dreams and plans for you life. 
7.  A healthy child is not a sign of my favor as an unhealthy child is not a sign of my displeasure.
8.  Relax, when things are stressful and kids are screaming and shoes are flying...breathe and stay calm..perhaps even laugh!!
9.  Those who are in need are the ones who get to experience my provision.
10.  There are seasons when it is okay to "sit out."  Seasons when taking a break is okay.

I wanted to take a few minutes to jot these down today. 

3 Months

My Sweet little Eli turned 3 months a few weeks ago. Due to the fact that he was 6 weeks early his adjusted age is now almost 2 months (since this post is a few weeks late).  I have to say that Mr. Eli is the absolute best baby!!  He is just the sweetest, most laid back little guy.  He is very content unless it is time to eat!  I have to brag on him because this month he went from being solely a bottle fed baby (breastmilk) to a nursing baby.  I was doubtful that we would be able to make the shift so late, but a week before we left for vacation I decided to give it another try (the idea of washing bottles and pump parts in a hotel sink for a week was good motivation).  I was shocked at how great of a little nurser he was!  He has proved to be such an adaptable little guy and we are so proud of him. 

1 month

2 months

 Eli started sleeping through the night at about 8 weeks (I told you he was the best baby ever)!  Generally he is sleeping from 9:30ish until about 6:30ish.  It is great to sleep again!!  He has started having longer awake times during the day, but still usually takes a nap between each feeding.  He has recently started giving us big smiles and is cooing a lot.  I must say that this seems to make all of my worries go away for the moment. 

At his last check-up he was 11lbs 6oz.  That is only the 3rd percentile for a 3 month old, but is much higher on the preemie growth curve.  His head circumference jumped a little on the growth chart.  He gave us quite a scare when the Neuro got an inaccurate measurement.  They pretty much had us scheduled for a shunt on Wednesday.  I called back and finally figured out that they were looking at the percentile number as the actual cm measurement.  Anyway it made a big difference and after I had cried for about 3 hours over this, I was very relieved to learn that it was a mistake!  If you pray for Eli, please pray that his head would continue to grow as it should.  We are praying we can avoid a shunt.  We are currently checking into all of our options in case we have to go down that path.  He will have a sedated MRI in a few weeks.   

This was a big month for his little feet.  He went through two sets of casts, had a procedure on his heels and graduated to some new boots and bars.  I am sure you can tell how much straighter his little feet look in comparison to his 1 and 2 month pics.  We have spent a lot of time at our ortho in the past few weeks. 

Eli is so loved by his big sisters.  They both love on him ALL THE TIME!  If you try to talk to Eli in front of Eliza she will boldly tell you, "No my E-li"  (pronounced with a short e).  It is so funny because she is normally so shy.   

Eli went on his first vacation to the mountains. 

Tummy time, tummy time and more tummy time. 

A sweet little smile

These are his shoes (we call them his snowboard)!  He originally had to wear them for 23 hours a day.  At his last visit they said he can go to about 18 hours a day now.  It is nice to get to take them off some now.  He hasn't seemed to mind them too much.  He will most likely wear then for a long time during the night to help keep his feet in the correct position.  So far so good.

Eli has some big appointments in November.  I must admit that I feel fearful over these, esp. with the holidays ahead.  We covet your prayers over his kidney's, bladder, head growth and always his sweet little legs.